So, how many times do you think you've had to sit down and write down the names, addresses and phone numbers of EVERY single doctor, therapist, etc. your child has ever seen? Filing for SSI for Josh, and this is a nightmare. They say they want AT LEAST the last 12 months...... but the more you give them, the better. SO, I've been wracking my brain for DAYS trying to come up with a somewhat comprehensive list. Oh goody.
In addition to this...... the psychologist who we ADORE, and have been taking a few of the kids to for the last few months, is suddenly NOT on our insurance, and until they can figure out this mess, and how to get him credentialed with them, we can't go see him......... of course, we find this out today while we are at his office, for TWO appointments. (Actually 3, b/c Josh was seeing the psychiatrist, and he's in the same office.) The psychologist has been doing testing on our 6 yr old daughter, who is apparently VERY bright, but also apparently about 2 years delayed. Sorry, I'm tired, can't remember what it's called. Anyway....... this explains a LOT. We are in the midst of getting her tested to find out what is going on with her, and this is NOT a good time to stop....... but, alas, I suppose we will be on PAUSE for a bit longer. What a nightmare. I was ready to burst into tears right there in the office, but I held it together until I got home. Thank goodness.
We survived Spring Break...... amazingly.
Eli got accepted to THREE magnet schools for High School next year...... and we have informed him that he must choose one that offers music. He is thrilled to find out that the one he REALLY wants offers an advanced band program. :) Also, they have early morning semimary (a church class) that starts at 6am at the high school... not sure yet how he's going to get there that early, but it will all work out.
Aaron has a second job interview in the morning at 6am with another company. We are hopeful that they will offer him the job, and that the money will really be better. Also, it would provide insurance for us, which would be super great, considering Aaron's blood pressure, and my longstanding neurological issues. Please pray that we get this........
Also, we are in the midst of trying to decide what to do about the future of our housing situation. We are currently renting a home, but it just isn't big enough. As you may know, the housing market is still in the downward turn, and we are hoping to pick something bigger up before it heads back in the upward direction. With the idea of the new job, we are taking this slow, but we do have a few great ideas brewing in our minds. We are just waiting for things to fall into place. Any further prayers in our behalf would definitely be appreciated.
Other things are happening....... but I am too tired to write them tonight. I'm going with Ben to a robotics competition tomorrow at UNLV. He is super-excited, and I am too..... mostly just to get to be with him, but having to go someplace OTHER than a doctor appointment is total BONUS! LOL
I need a vacation...........
Thursday, March 27, 2008
Sunday, March 16, 2008
Time eludes me...
I do not know where it goes! Of course, it doesn't help that the lawmakers decided to mess with Mother Nature some more, thus moving the time change I've been accustomed to since I was a child to different dates both in the fall AND the Spring! That is SO not fair.... It's been a week already, and still, I am not caught up.
It's been an interesting couple of weeks since I blogged last. We are continuing with Plan F(orward), and wow, have we been having a roller coaster ride! However, it seems that we on the right path, it's just a really HILLY one! Lots of ups and downs. My faith is definitely being tested, but I am holding steady, and just making sure that I remember the Answers I've received over the last few weeks, and testing every new thing that comes to my mind against those Answers. If there is no balance, then I let the idea go until I see it come into balance. This plan seems to be working, although, it is very frustrating to have to weed through everything like that. I am just really glad that I have those Answers to compare everything to... without them, I'd be surely Lost!
We have found an agency here in town that does EXACTLY what we need for Josh! I am SO excited!!! The director came out to our home yesterday to assess Joshua and our family situation. I was thrilled to hear that the therapist who recommended this program, who also works for them, has requested to keep our family. Sandra is just a doll, and she has Josh's number! LOL Nothing gets by her, and I love that! There will also be a basic skills worker who will come out to our home 2 or 3 times a week, who will work with Joshua on his basic life skills. He will get all the kids and parents together so we can work on issues, and also will take Josh out into the community to help him there. We were talking about the horse therapy, and Natasha (the director) was SO excited to hear about that, she said we should make sure we put that as part of Josh's treatment plan. They will also help us get an IEP together for Joshua, and should there be any issues at school, they will come in to the school for meetings, conferences, etc. This really feels SO right, and it allows us to keep Joshua in the chiropractic care (drjenkins.org) and the horse therapy, which I already mentioned. The only trick is keeping the insurance coverage where it needs to be, but Natasha said she would make the necessary calls tomorrow. So, please pray that we can do this, and that the medicaid people will see the good in this vs. the horrible idea of sending Josh 500 miles away to a place where he has no support system. So, again, Y'all PRAY!!!
The rest of the kids are doing good.... it's Spring Break! Yay us! LOL We'll be taking a day trip up to St. George one day this week, and the kids are all excited about that. Eli is mad because he wanted to work at the Rec Center over the break, but he didn't get his missing assignments completed, so that's a no-go for him. He is trying to earn his marbles back, so he can have some priveleges while he is home this week. I hope he can figure out how to keep them once he earns them back.
oh, Aaron got injured a week ago in a tragic flip of one of our go-karts. He shredded the skin of one of his knuckles, and jammed the other knuckle pretty hard. He only needed 3 stitches, and thankfully it is healing very well. He is going back to the doctor on Tuesday, and hopefully Dr. Frank will do something about Aaron's blood pressure. The ER folks were more concerned about Aaron's blood pressure the other night than they were about his hand. They gave him some bp meds in his IV, which helped, but it's back up now. We signed up for the discount program at Walgreen's, so hopefully that will help with the cost of medication.
The weather here in Vegas is funny. We have had rain in the valley today, and snow in the mountains. Just a few days ago it was 80 degrees........ funny. No wonder everyone is sick! And they say this isn't going to be the last cold snap we have...... Yay us!
It's been an interesting couple of weeks since I blogged last. We are continuing with Plan F(orward), and wow, have we been having a roller coaster ride! However, it seems that we on the right path, it's just a really HILLY one! Lots of ups and downs. My faith is definitely being tested, but I am holding steady, and just making sure that I remember the Answers I've received over the last few weeks, and testing every new thing that comes to my mind against those Answers. If there is no balance, then I let the idea go until I see it come into balance. This plan seems to be working, although, it is very frustrating to have to weed through everything like that. I am just really glad that I have those Answers to compare everything to... without them, I'd be surely Lost!
We have found an agency here in town that does EXACTLY what we need for Josh! I am SO excited!!! The director came out to our home yesterday to assess Joshua and our family situation. I was thrilled to hear that the therapist who recommended this program, who also works for them, has requested to keep our family. Sandra is just a doll, and she has Josh's number! LOL Nothing gets by her, and I love that! There will also be a basic skills worker who will come out to our home 2 or 3 times a week, who will work with Joshua on his basic life skills. He will get all the kids and parents together so we can work on issues, and also will take Josh out into the community to help him there. We were talking about the horse therapy, and Natasha (the director) was SO excited to hear about that, she said we should make sure we put that as part of Josh's treatment plan. They will also help us get an IEP together for Joshua, and should there be any issues at school, they will come in to the school for meetings, conferences, etc. This really feels SO right, and it allows us to keep Joshua in the chiropractic care (drjenkins.org) and the horse therapy, which I already mentioned. The only trick is keeping the insurance coverage where it needs to be, but Natasha said she would make the necessary calls tomorrow. So, please pray that we can do this, and that the medicaid people will see the good in this vs. the horrible idea of sending Josh 500 miles away to a place where he has no support system. So, again, Y'all PRAY!!!
The rest of the kids are doing good.... it's Spring Break! Yay us! LOL We'll be taking a day trip up to St. George one day this week, and the kids are all excited about that. Eli is mad because he wanted to work at the Rec Center over the break, but he didn't get his missing assignments completed, so that's a no-go for him. He is trying to earn his marbles back, so he can have some priveleges while he is home this week. I hope he can figure out how to keep them once he earns them back.
oh, Aaron got injured a week ago in a tragic flip of one of our go-karts. He shredded the skin of one of his knuckles, and jammed the other knuckle pretty hard. He only needed 3 stitches, and thankfully it is healing very well. He is going back to the doctor on Tuesday, and hopefully Dr. Frank will do something about Aaron's blood pressure. The ER folks were more concerned about Aaron's blood pressure the other night than they were about his hand. They gave him some bp meds in his IV, which helped, but it's back up now. We signed up for the discount program at Walgreen's, so hopefully that will help with the cost of medication.
The weather here in Vegas is funny. We have had rain in the valley today, and snow in the mountains. Just a few days ago it was 80 degrees........ funny. No wonder everyone is sick! And they say this isn't going to be the last cold snap we have...... Yay us!
Monday, March 3, 2008
Well, how about we try a NEW plan?
Since plans A-G have failed............ again, we go with plan F, which is Plan FORWARD.
So, Josh didn't tolerate the new meds very well, at all. In fact, he tolerated them so poorly that within just a few days (by Monday of the next week!) I was becoming very concerned about him. I brought my concerns to the attention of the doctor and staff, and they assured me that this was all "normal" (yeah, sure), and that they wanted to give him another week or so before doing anything. Besides, the residential treatment center they wanted to send him to could handle it.... and they were only a mere 500 miles away. Nice, huh? Well, we continued with much fasting and prayer, pleading for answers from Heaven. And, isn't it strange how those come about? The following week at treatment team, I again expressed my concerns about the combination of medications they had Joshua on, but they assured me that he was fine, and that they'd be ready to release him by the end of that week. It was "any day", they were going to get the go-ahead to send Josh to Reno. I had done my research, and honestly, Willow Springs doesn't seem like all that bad of a place. Better, by far, than the place he was in, it seems. But, still, I was very concerned about what to do with Joshua in the meantime.
Well, God answers our prayers in strange ways sometimes. His ways are not our ways. But, thankfully, I've been studying His ways for long enough that I can recognize His hand, even in spite of the strange circumstance surrounding things. After treatment team and family therapy that day, I left with the idea that I would request a med wash when we got to Reno. We'd be likely going there in just a few days, and I was getting my schedule cleared so that we could do that.
Fast forward to 3:30 pm that day. The nurse called to see if she could give Joshua some Tylenol, because he had a fever. Sure, go head, I said. Well, half an hour later, they called again, in a panic because now Josh's fever had jumped to 105.5 degrees, and they were letting me know that I needed to meet them at the ER so they could check Josh out. I went, we were there for several hours, they gave Josh some gatorade, said he looked fine, and sent us on our way.
The next day, same thing.... only this time, they waited til 10pm to call me, when his fever spiked again..... back to the ER, stayed there til 4am, and then came home, and was just so exhausted I could barely move. Got my kids to school, and vegged the rest of the day. Thursday they said he was okay, but then Friday morning, I got another call that I needed to come down right away, because now Josh had broken out into a horrible rash all over his body, and they didn't know what to do. So, I dropped everything, farmed out the little ones to my friend, and went down there. Yup, he was COVERED in this rash, his fever was back up, and he was NOT feeling good at ALL! The staff pediatrician came in, and she was perplexed.
Josh had thrown up several times in the last few days, and now with the rash, they were very concerned that he might give this illness to the other children in the unit. I asked OVER AND OVER AGAIN, "could this be a reaction to the medication?", knowing that one of the major side effects of the meds he was taking was rash and feeling of malaise, and vomitting. We were just going down the list. Oh, no, no, no... couldn't be that, they said. After all, we're professionals, and you're just a mom. What could you possibly know? We're sure it's a virus, they said, but we can't have him here, not knowing.... and our pediatrician doesn;'t really DO sick kids, so yeah... you gotta take him back to the ER.
Well, we contacted OUR pediatrician, through the nurses there at the facility, and he actually said to bring Josh in to his office, and he'd have a look. Somehow, they interpreted that to mean to take him to the ER. I dunno.... I just found this out a couple of days ago. But anyway, we took him there, poor kid was just shaking like a leaf (which is also a common side effect, whaddaya know?) he's covered all over with this rash, and everyone in the ER freaked out.
(Side note, they were plenty freaked out anyway, as they had a 15 year old kid who was brought in with a gunshot wound from a driveby shooting, and they ended up cracking his chest open, and still, could not save him. I so feel for his family, but I can tell you, they really DID try to save him. During all of this, they tried to throw me out of the ER, but I stood my Mommy ground, and told them that they would have to send us BOTH out -- me AND Josh -- because I was NOT going to leave him alone. They let us stay, but made us stay in our tiny little room.)
Several doctors came in and looked at Josh's rash, they quarantined us, and it was alot like the ET movie, where everyone had to dress up in these yellow suits with gloves and masks and goggles..... except for me, and I could come and go as i pleased, pretty much, as long as I promised to wash my hands. Yeah, thanks. I think they figured I had already been exposed or something. LOL The staff pediatrician at the ER couldn't come in the room to even look at him, because she was pregnant, and they thought MAYBE he had Fifth Disease (which is no big deal unless you are pregnant and get exposed), but they couldn't say for sure, because the test you do for that comes back in 7 - 10 days, maybe? Sometimes, longer. The staff at the psychiatric unit didn't want him back, because what if it WASN"T just Fifth Disease... oh wait... I have to tell you...... they went ON AND ON, about this being some form of Parvo virus, and they were sure he'd picked it up from a dog, and they just couldn't chance him infecting the general public with this very strange horrific disease,and on and on......
Well, they ended up admitting him, after many many hours.... the nurses on the peds unit were GREAT, but they were also totally freaked out with the parvo virus diagnosis, having never treated this TERRIBLE disease, and SO worried they would take the virus home and infect their puppies or something.... (Now, in case you don't know, Fifth Disease is caused by Human Parvo virus B19, but it is NOT the same virus that the dogs get, and again, unless you're pregnant, it's not a big deal. In fact, once the rash shows up, you're not likely contagious anymore anyway, so..... yeah.) They kept Josh for 6 days. That's right....... SIX days. I was there EVERY day, for at least a few hours, to check on him. He was fine, and his rash went away after a few days....... and the fever went away, too.
Now, during all of this, I just pretty much sat and watched God do His work. And, we continued to pray and fast and look for answers. As soon as Josh started his fevers, they stopped giving him the medications that I was worried about. They did give him another dose the day before he broke out into the rash. Coincidince? I don't know.... I know some people call it that. I don't.
The whole time Josh was in Summerlin Hospital, he didn't have anything other than Tylenol and Motrin. That was IT. Guess Josh got his med wash, and not only that, he got it under the supervision of medically trained personnel in the PICU unit (it was the only bed they had available!) And, in the midst of all of this, we also got an MRI of Josh's brain, and a visit with a pediatric neurologist.
During the time that Josh was in the hospital, I woke up one morning with an idea that I just could NOT let go of. It just sort of SLAMMED into my consciousness, and would not let up. The idea was... horse therapy! I contemplated the fact that we live in a small gated community, on a very small lot, and no room for a horse. But, that didn't stop me. I knew that the area we live in has a LOT of horses, and that SURELY there was a horse around us that was lonely, and needed some love. I determined that I would begin my search, even if it meant just driving around and knocking on doors, I was going to FIND a horse! Also, we had the idea of treating Josh with herbs, and giving his body a rest from all those chemicals in the medications they had been giving him. We knew we couldn't just NOT treat him, ya know? I had read in a book about parenting bipolar children which herbs had been found to be effective, and we decided it was worth giving it a try.
Well, I did find a horse! I didn't have to do any knocking... I just asked around. And, then at church last week, I made a public request for help. Immediately, a friend of mine told me that she had JUST the horse for Josh! She talked with the owner, and sure enough..... Daisy, an old appaloosa mare, will be our therapy horse! We will try to go and meet her today. (Last week was just too frazzled with all the appointments we had).
I ran all of this horse therapy ideas, and the idea of treating Josh with herbs past the pediatrician and Josh's therapist at the psych unit. Also, the school psychologist who has become my friend through all of this. They all agreed that it was worth a try. Much to the chagrin of the people at the psych unit (nurses), our pediatrician released Josh to me, and we have moved forward. We went to visit a master herbalist's staff, and they hooked us up with some herbs to get us started. The first week was different with Josh, as we saw him begin to cycle, but now it seems that he is evening out pretty good. He doesn't seem to mind taking the herbs, even though they taste strong, and he is seeing a difference in himself, too.
Aaron's brother turned us on to a homeopathic chiropractor, who we will be going to see today. Tomorrow, we will follow up with the neurologist, and then we will go from there.
Josh did VERY well at church yesterday, which is usually a really hard thing for Josh to handle. Three hours. But, he did really, really well! We were SO impressed!
Last weekend, we cleared out and painted the bedroom where Josh and two of his brothers sleep. It changed from a neon celery color to a nice spring waterfall blue. The change is amazing! Aaron built a triple decker bunkbed for them, and it is now in the room. It's awesome! I will have to post pictures soon. We now have the children arranged so that Josh essentially has his room to himself every other week, while Nate & Tim are with their mom. SO far, so good!
We will see how things go, and honestly, we are taking things one day at a time. We have received communication from the residential treatment center up in Reno, and that is still an option that we are keeping open. I am homeschooling Josh at the moment, and will likely enroll him in tbe K-12 charter homeschool for next fall. The school district will pay for the curriculum, and there will be a qualified teacher who will check in with us. I am excited about that. Josh just hasn't tolerated a full classroom very well -- since Kindergarten!
We are trusting that God will lead us down His paths, and so far, he has done just that. We will be starting work on Josh's pinewood derby car, and we will find a way to work that in to our homeschool curriculum for math and science. We are SO thankful for all the prayers that have been offered on our behalf, and for our friends who have chipped right in to help get the other children where they need to be while I have been trapsing around the countryside, so it seems, taking Josh to all his appointments. ;)
I have been reading this great book about parenting bipolar children, and wow, do I have a LOT to learn! Aside from the herbs, we are also finding that there are other accommodations that these kids need. And, we are implementing them one by one. I've gotta figure out how to download songs onto an MP3 player I got for Josh over the weekend. Mostly, we'll have primary church songs, hymns, and classical music on there, but it also has an FM tuner on it, so he can listen to other music as well.
Well, it's time to get moving... Gotta be out the door in one hour, and I've gotta get some kids dressed before we go. I just wanted to update, and sorry it's so long.... I am sure I didn't even include everything. There's plenty going on with the other children, but that will have to wait for another day.
In meantime..... we'll be playing with Daisy. :)
So, Josh didn't tolerate the new meds very well, at all. In fact, he tolerated them so poorly that within just a few days (by Monday of the next week!) I was becoming very concerned about him. I brought my concerns to the attention of the doctor and staff, and they assured me that this was all "normal" (yeah, sure), and that they wanted to give him another week or so before doing anything. Besides, the residential treatment center they wanted to send him to could handle it.... and they were only a mere 500 miles away. Nice, huh? Well, we continued with much fasting and prayer, pleading for answers from Heaven. And, isn't it strange how those come about? The following week at treatment team, I again expressed my concerns about the combination of medications they had Joshua on, but they assured me that he was fine, and that they'd be ready to release him by the end of that week. It was "any day", they were going to get the go-ahead to send Josh to Reno. I had done my research, and honestly, Willow Springs doesn't seem like all that bad of a place. Better, by far, than the place he was in, it seems. But, still, I was very concerned about what to do with Joshua in the meantime.
Well, God answers our prayers in strange ways sometimes. His ways are not our ways. But, thankfully, I've been studying His ways for long enough that I can recognize His hand, even in spite of the strange circumstance surrounding things. After treatment team and family therapy that day, I left with the idea that I would request a med wash when we got to Reno. We'd be likely going there in just a few days, and I was getting my schedule cleared so that we could do that.
Fast forward to 3:30 pm that day. The nurse called to see if she could give Joshua some Tylenol, because he had a fever. Sure, go head, I said. Well, half an hour later, they called again, in a panic because now Josh's fever had jumped to 105.5 degrees, and they were letting me know that I needed to meet them at the ER so they could check Josh out. I went, we were there for several hours, they gave Josh some gatorade, said he looked fine, and sent us on our way.
The next day, same thing.... only this time, they waited til 10pm to call me, when his fever spiked again..... back to the ER, stayed there til 4am, and then came home, and was just so exhausted I could barely move. Got my kids to school, and vegged the rest of the day. Thursday they said he was okay, but then Friday morning, I got another call that I needed to come down right away, because now Josh had broken out into a horrible rash all over his body, and they didn't know what to do. So, I dropped everything, farmed out the little ones to my friend, and went down there. Yup, he was COVERED in this rash, his fever was back up, and he was NOT feeling good at ALL! The staff pediatrician came in, and she was perplexed.
Josh had thrown up several times in the last few days, and now with the rash, they were very concerned that he might give this illness to the other children in the unit. I asked OVER AND OVER AGAIN, "could this be a reaction to the medication?", knowing that one of the major side effects of the meds he was taking was rash and feeling of malaise, and vomitting. We were just going down the list. Oh, no, no, no... couldn't be that, they said. After all, we're professionals, and you're just a mom. What could you possibly know? We're sure it's a virus, they said, but we can't have him here, not knowing.... and our pediatrician doesn;'t really DO sick kids, so yeah... you gotta take him back to the ER.
Well, we contacted OUR pediatrician, through the nurses there at the facility, and he actually said to bring Josh in to his office, and he'd have a look. Somehow, they interpreted that to mean to take him to the ER. I dunno.... I just found this out a couple of days ago. But anyway, we took him there, poor kid was just shaking like a leaf (which is also a common side effect, whaddaya know?) he's covered all over with this rash, and everyone in the ER freaked out.
(Side note, they were plenty freaked out anyway, as they had a 15 year old kid who was brought in with a gunshot wound from a driveby shooting, and they ended up cracking his chest open, and still, could not save him. I so feel for his family, but I can tell you, they really DID try to save him. During all of this, they tried to throw me out of the ER, but I stood my Mommy ground, and told them that they would have to send us BOTH out -- me AND Josh -- because I was NOT going to leave him alone. They let us stay, but made us stay in our tiny little room.)
Several doctors came in and looked at Josh's rash, they quarantined us, and it was alot like the ET movie, where everyone had to dress up in these yellow suits with gloves and masks and goggles..... except for me, and I could come and go as i pleased, pretty much, as long as I promised to wash my hands. Yeah, thanks. I think they figured I had already been exposed or something. LOL The staff pediatrician at the ER couldn't come in the room to even look at him, because she was pregnant, and they thought MAYBE he had Fifth Disease (which is no big deal unless you are pregnant and get exposed), but they couldn't say for sure, because the test you do for that comes back in 7 - 10 days, maybe? Sometimes, longer. The staff at the psychiatric unit didn't want him back, because what if it WASN"T just Fifth Disease... oh wait... I have to tell you...... they went ON AND ON, about this being some form of Parvo virus, and they were sure he'd picked it up from a dog, and they just couldn't chance him infecting the general public with this very strange horrific disease,and on and on......
Well, they ended up admitting him, after many many hours.... the nurses on the peds unit were GREAT, but they were also totally freaked out with the parvo virus diagnosis, having never treated this TERRIBLE disease, and SO worried they would take the virus home and infect their puppies or something.... (Now, in case you don't know, Fifth Disease is caused by Human Parvo virus B19, but it is NOT the same virus that the dogs get, and again, unless you're pregnant, it's not a big deal. In fact, once the rash shows up, you're not likely contagious anymore anyway, so..... yeah.) They kept Josh for 6 days. That's right....... SIX days. I was there EVERY day, for at least a few hours, to check on him. He was fine, and his rash went away after a few days....... and the fever went away, too.
Now, during all of this, I just pretty much sat and watched God do His work. And, we continued to pray and fast and look for answers. As soon as Josh started his fevers, they stopped giving him the medications that I was worried about. They did give him another dose the day before he broke out into the rash. Coincidince? I don't know.... I know some people call it that. I don't.
The whole time Josh was in Summerlin Hospital, he didn't have anything other than Tylenol and Motrin. That was IT. Guess Josh got his med wash, and not only that, he got it under the supervision of medically trained personnel in the PICU unit (it was the only bed they had available!) And, in the midst of all of this, we also got an MRI of Josh's brain, and a visit with a pediatric neurologist.
During the time that Josh was in the hospital, I woke up one morning with an idea that I just could NOT let go of. It just sort of SLAMMED into my consciousness, and would not let up. The idea was... horse therapy! I contemplated the fact that we live in a small gated community, on a very small lot, and no room for a horse. But, that didn't stop me. I knew that the area we live in has a LOT of horses, and that SURELY there was a horse around us that was lonely, and needed some love. I determined that I would begin my search, even if it meant just driving around and knocking on doors, I was going to FIND a horse! Also, we had the idea of treating Josh with herbs, and giving his body a rest from all those chemicals in the medications they had been giving him. We knew we couldn't just NOT treat him, ya know? I had read in a book about parenting bipolar children which herbs had been found to be effective, and we decided it was worth giving it a try.
Well, I did find a horse! I didn't have to do any knocking... I just asked around. And, then at church last week, I made a public request for help. Immediately, a friend of mine told me that she had JUST the horse for Josh! She talked with the owner, and sure enough..... Daisy, an old appaloosa mare, will be our therapy horse! We will try to go and meet her today. (Last week was just too frazzled with all the appointments we had).
I ran all of this horse therapy ideas, and the idea of treating Josh with herbs past the pediatrician and Josh's therapist at the psych unit. Also, the school psychologist who has become my friend through all of this. They all agreed that it was worth a try. Much to the chagrin of the people at the psych unit (nurses), our pediatrician released Josh to me, and we have moved forward. We went to visit a master herbalist's staff, and they hooked us up with some herbs to get us started. The first week was different with Josh, as we saw him begin to cycle, but now it seems that he is evening out pretty good. He doesn't seem to mind taking the herbs, even though they taste strong, and he is seeing a difference in himself, too.
Aaron's brother turned us on to a homeopathic chiropractor, who we will be going to see today. Tomorrow, we will follow up with the neurologist, and then we will go from there.
Josh did VERY well at church yesterday, which is usually a really hard thing for Josh to handle. Three hours. But, he did really, really well! We were SO impressed!
Last weekend, we cleared out and painted the bedroom where Josh and two of his brothers sleep. It changed from a neon celery color to a nice spring waterfall blue. The change is amazing! Aaron built a triple decker bunkbed for them, and it is now in the room. It's awesome! I will have to post pictures soon. We now have the children arranged so that Josh essentially has his room to himself every other week, while Nate & Tim are with their mom. SO far, so good!
We will see how things go, and honestly, we are taking things one day at a time. We have received communication from the residential treatment center up in Reno, and that is still an option that we are keeping open. I am homeschooling Josh at the moment, and will likely enroll him in tbe K-12 charter homeschool for next fall. The school district will pay for the curriculum, and there will be a qualified teacher who will check in with us. I am excited about that. Josh just hasn't tolerated a full classroom very well -- since Kindergarten!
We are trusting that God will lead us down His paths, and so far, he has done just that. We will be starting work on Josh's pinewood derby car, and we will find a way to work that in to our homeschool curriculum for math and science. We are SO thankful for all the prayers that have been offered on our behalf, and for our friends who have chipped right in to help get the other children where they need to be while I have been trapsing around the countryside, so it seems, taking Josh to all his appointments. ;)
I have been reading this great book about parenting bipolar children, and wow, do I have a LOT to learn! Aside from the herbs, we are also finding that there are other accommodations that these kids need. And, we are implementing them one by one. I've gotta figure out how to download songs onto an MP3 player I got for Josh over the weekend. Mostly, we'll have primary church songs, hymns, and classical music on there, but it also has an FM tuner on it, so he can listen to other music as well.
Well, it's time to get moving... Gotta be out the door in one hour, and I've gotta get some kids dressed before we go. I just wanted to update, and sorry it's so long.... I am sure I didn't even include everything. There's plenty going on with the other children, but that will have to wait for another day.
In meantime..... we'll be playing with Daisy. :)
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